August 22, 2013

Update on Ace

Ace has been off chemo for the past 3 weeks.  His ANC has been low.  It was at 500 on 8/5 at his last appointment with Dr. McClain.  The next week, it was only up to 560.  It rebounded to 900 the third week, but he has been battling an ear infection and upper respiratory infection.  He will be getting tubes in his ears on the 28th.  We are hoping this will stop the ear infections/fluid on the ears and help him to feel better.  We will resume chemo after he gets the tubes in.  The break has been nice, and so far there are no signs of LCH rash while he has been off chemo.  He had a pesky rash on his face that was making us pretty nervous over the past month or so. We made several trips to see Dr. Anderson(our favorite dermatologist- we can't say enough good things about him).  He diagnosed it as perioral dermatitis.  It started on his chin, but then spread up to his nose and even onto his eyelids.  Ace is obviously going to have pretty sensitive skin. :-(   It started clearing up right before his appointment with Dr. McClain on the 5th.  Dr. McClain had told us that if we didn't start seeing some major improvement in it by the 5th, they would need to biopsy it just to be sure it wasn't LCH. We were so thankful it started clearing up a few days before Ace's appointment on the 5th.  Ace is doing great!  He is into EVERYTHING!!!!

Waiting for his appointment with Dr. McClain



"Driving" with his sister in her cozy coupe

A friendly reminder to keep the bathroom door closed


Who, me?  I didn't do anything!!!!



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