Ace's appointment went great today. The head CT and abdominal ultrasound results were all clear. Ace has skin only LCH and we could not be more thankful. Dr. McClain feels that Ace's rash on his back, bottom, and under his arms is not getting any better and wants to begin treating him with an oral form of chemotherapy called 6-MP(Mercaptopurine). He will take it once daily at night for the next few weeks. He is also taking an antibiotic to prevent infection or pneumonia. Dr. McClain said that he has around a 50% success rate treating skin only LCH with the oral chemotherapy. We go back for a follow up appointment on March 4th. If the rash is not responding to the oral chemotherapy, then Ace will have a port put in for infusion chemotherapy. If it is responding, Ace will continue on the oral form for a year. All in all, we are thrilled. We are so thankful that the skin is the only organ the LCH is affecting and are extremely hopeful that the oral form of chemotherapy will work. Please keep Ace in your prayers. We are hopeful that the side effects of the medicine will be minimal and that the oral form will work.
Ready for the day!
Today's appointment was a pretty long one. They had to do two separate draws to get blood for lab work. Ace was not a happy camper. We are headed home now and he is sleeping. We are so glad to have the past two days behind us and we are so thankful for good test results.
No comments:
Post a Comment